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dc.contributor.authorZavagli, Veronica
dc.contributor.authorRaccichini, Melania
dc.contributor.authorErcolani, Giacomo
dc.contributor.authorFranchini, Luca
dc.contributor.authorVarani, Silvia
dc.contributor.authorPannuti, Raffaella
dc.date.accessioned2020-06-11T12:00:31Z
dc.date.available2020-06-11T12:00:31Z
dc.date.issued2019
dc.identifier.citationZavagli V, Raccichini M, Ercolani G, Franchini L, Varani S, Pannuti R. Care for carers: an investigation on family caregivers' needs, tasks, and experiences. Translational Medicine @ UniSa 2019, 19(9): 54-59.it_IT
dc.identifier.issn2239-9747it_IT
dc.identifier.urihttp://www.translationalmedicine.unisa.it/indexit_IT
dc.identifier.urihttp://elea.unisa.it:8080/xmlui/handle/10556/4529
dc.identifier.urihttp://dx.doi.org/10.14273/unisa-2723
dc.description.abstractFamily caregivers have an essential active role in cancer patients assistance at home. They play a key role in the management of patients and provide some caregiving activities once provided only by professional caregivers. Often they are not adequately trained or prepared, however a systematic assessment of their needs is rarely practiced. For these reasons, this preliminary investigation was designed to better identify the needs and changes in the lifestyles of family caregivers of home cancer palliative care. Participants have completed a battery of self-report questionnaires, including the Caregiving Tasks Consequences and Needs Questionnaire (CaTCoN), that measures caregivers' experiences (the extent of cancer caregiving tasks and consequences) and the caregivers' needs, mainly concerning the interaction with the health care professionals. The results confirmed that cancer caregiving is burdensome. Large proportions of caregivers experienced substantial caregiving workload as well as a range of negative consequences, e.g. lack of time for social relations. Furthermore, considerable proportions of caregivers experienced problems or had unmet needs regarding the interaction with health care professionals. Prominent problematic aspects included the provision of enough information to the caregivers and attention to the caregivers' well-being and feelings. The assessment of caregivers' needs is a critical step for determining appropriate support services, providing high-quality care, achieving caregiver satisfaction, and decreasing caregiver burden. Findings of this investigation will certainly contribute to develop and publish Guidelines and to provide programmes and on-going education where caregivers feel supported in their role.it_IT
dc.format.extentP. 54-59it_IT
dc.language.isoenit_IT
dc.sourceUniSa. Sistema Bibliotecario di Ateneoit_IT
dc.subjectCaregivingit_IT
dc.subjectFamily caregiverit_IT
dc.subjectCancer, needsit_IT
dc.subjectOncological home-careit_IT
dc.subjectPalliative home-careit_IT
dc.titleCare for carers: an investigation on family caregivers' needs, tasks, and experiencesit_IT
dc.typeArticleit_IT
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